Depending on your patients’ diagnosis, parents will receive support and education to ensure their children are safe and healthy at home. Education and training may take place in a clinic, or inpatient setting, or alternatively over the phone/ zoom. This may include red flag training or ‘what to look for’ signs, BLS training, preparation for procedures such as electrophysiology procedure, pacemaker insertion, ICD implantation.

We liaise very closely with the patients consultant to address any clinical concerns.

We also provide support to parents and address any concerns around parents wellbeing, or issues around housing or finances and can refer them as appropriate to our social work department, family support team or psychology team. 

The CNS team will liaise with local teams who support families at home. We will liaise with the named health visitor to ensure our neonatal patients receive weekly weights. We also work closely with PEC (paediatrician with expertise in cardiology) within the network, to ensure patients have paediatrician follow up as needed or open access to their local A&E. we are also very happy to speak with schools to make a care plan or to provide education to the teaching staff.

For more information please visit the GOSH website, link below

Electrophysiology Service — heart rhythm disorders | Great Ormond Street Hospital